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« Ȇtre là pour être là » : discours croisés sur le bénévolat d’accompagnement

Abstract : This paper addresses the presence of volunteers working with hospitalized patients receiving palliative care and the meaning each of the actors gives to that presence. It is based on a body of semi-structured interviews with patients, families, medical personnel, and volunteers in 10 hospitals. Within the context of the extension of a palliative approach to all departments where deaths occur, we attempt to understand how (and within what work settings) personnel and volunteers “work” together, and how that lay presence is perceived by patients at the end of life and their families. While the analysis highlighted important differences in viewpoints on the volunteer work studied, primarily as a function of the type of actors involved and the work setting, it also identified a certain number of conflicts that each person attempts to overcome in their own way. This raises the question of what form this particular activity should take in France, an activity that, in the words of volunteers, is not to “do” but to “be there to be there [out of] human solidarity.”
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Submitted on : Tuesday, December 14, 2021 - 3:18:13 PM
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Yaël Tibi-Lévy, Martine Bungener. « Ȇtre là pour être là » : discours croisés sur le bénévolat d’accompagnement. Sciences Sociales et Santé, 2017, 35 (2), pp.5-31. ⟨10.3917/sss.352.0005⟩. ⟨hal-03480156⟩



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