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Du handicap psychique aux paradoxes de sa reconnaissance : Éléments d’un savoir ordinaire des personnes vivant avec un trouble psychique grave

Abstract : In France, despite the mobilisation of health consumer organizations, people with severe mental disorders (PSMD) have yet to consolidate shared knowledge of their condition. Rather than employ the still unstable official definitions of “psychic handicap”, a notion akin but not equivalent to psychiatric disability, this article shows how through verbal exchanges, subjects can produce elements of a uniquely patient-based knowledge about the lived effects of their illness and its interaction with context and everyday life. Using perspectivist principles and modified conversation analysis, we conducted and analyzed collective interviews with members of both Mutual Aid Groups (MAG) and hospitalised patients. This allowed us to capture major aspects of shared consumer experiences, as both source and effect of disability. For these subjects, the invisible quality of psychic handicap becomes an obstacle to re-entering the realm of the “normal”. Finally, the effects of treatment, of relationships and of administrative management, constitute, according to the interviewees, a double, or substitute “handicap”, like the iatrogenic disability caused by medication effects. Patient knowledge thus clarifies how official recognition of the category the psychic handicap runs the risk of reproducing the very phenomena it aimed to diminish, namely stigmatisation and marginalisation.
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https://hal-cnrs.archives-ouvertes.fr/hal-03477291
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Submitted on : Monday, December 13, 2021 - 1:24:19 PM
Last modification on : Thursday, December 16, 2021 - 1:22:05 PM

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Anne M Lovell, Aurélien Troisœufs, M Mora. Du handicap psychique aux paradoxes de sa reconnaissance : Éléments d’un savoir ordinaire des personnes vivant avec un trouble psychique grave. Revue française des affaires sociales, La documentation française, 2009, pp.209-227. ⟨10.3917/rfas.091.0209⟩. ⟨hal-03477291⟩

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