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Répondre aux besoins et attentes des malades en fin de vie et de leurs proches – Enquête auprès de 64 professionnels des soins palliatifs et bénévoles

Abstract : This study sought to analyse how palliative care workers account for the needs and expectations of patients and their close families. Qualitative surveys were conducted in ten health-care teams (five palliative care units and five palliative care support teams). Between June 2005 and May 2006, 64 members of health-care teams and volunteer workers participated in semi-directive interviews. All interviews were recorded and fully transcribed, generating 1900 pages of text. Data were analysed with the Alceste text analysis software. The terms post frequently used to describe palliative activities evolved around two themes: dialogue and availability. These themes were related to a particular conception of the notion of “time”, one of the three words most often used. In addition, seven discourse profiles on palliative practices were identified. This enabled us to account for the way in which each of the persons interviewed “functioned” and to identify the commonalities in the different points. We discussed the material obtained, the method for analysing the data and the results. In a context in which the palliative culture is being integrated into classical hospital services, these elements recall the importance of the human relationships dimensions in palliative practices and highlight the competences that all hospital health-care workers confronted with the end of life have to adopt.
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https://hal-cnrs.archives-ouvertes.fr/hal-03477290
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Submitted on : Monday, December 13, 2021 - 1:24:17 PM
Last modification on : Thursday, December 16, 2021 - 12:07:23 PM

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Yaël Tibi-Lévy. Répondre aux besoins et attentes des malades en fin de vie et de leurs proches – Enquête auprès de 64 professionnels des soins palliatifs et bénévoles. Médecine Palliative, Elsevier Masson, 2009, 8 (6), pp.276-289. ⟨10.1016/j.medpal.2009.07.001⟩. ⟨hal-03477290⟩

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