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Family Management of Infants with Fetal Alcohol Syndrome or Fetal Alcohol Spectrum Disorders

Abstract : We studied the effects on family life of medical, social, and/or judiciary decisions taken when 28 infants born between 1995 and 2003 to alcohol-abusing mothers and diagnosed with fetal alcohol syndrome (FAS) or fetal alcohol spectrum disorders (FASD) were discharged from a neonatology hospital unit near Paris. Medical files of these infants and their mothers' obstetrical files (when available) were retrieved from the hospital database; data was then collected and analyzed retrospectively. Post-discharge familial settings were established using questionnaires or telephone interviews with their doctors or the staff of the institutions where they were fostered. The 28 mothers of these FAS/FASD children all came from underprivileged backgrounds, had chronic health problems and/or lived with alcohol abusers. The neonatology team has to decide, at discharge, whether the families can provide a 'good environment' for their babies, if not, they refer them to the courts. In any case, the mother/parents must obey certain rules (such as respecting follow-up appointments for example). These FAS/FASD infants usually came from dysfunctional families, and at hospital discharge, 18% of them were put in care, while the mothers could be given court-approved visiting rights. When the infants lived with their biological families, the mothers' marital situation usually deteriorated within 2 years. The mothers/parents often proved unable to look after their babies properly; this was reported to the courts, and their children put in care. Based on our results, we recommend that the current management of families with FAS/FASD children should be reviewed
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https://hal-cnrs.archives-ouvertes.fr/hal-03477068
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Submitted on : Monday, December 13, 2021 - 12:02:43 PM
Last modification on : Thursday, December 16, 2021 - 3:04:23 AM

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Stéphanie Toutain, C Lejeune. Family Management of Infants with Fetal Alcohol Syndrome or Fetal Alcohol Spectrum Disorders. Journal of Developmental and Physical Disabilities, 2008, 20 (5), pp.425-436. ⟨10.1007/s10882-008-9110-z⟩. ⟨hal-03477068⟩

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